Human Genomics

Why ?
Human genomics looks at our DNA to understand disease, biology and diversity. Most participants in current genomic studies are of white European descent, while individuals of African descent represent only a very small proportion. This lack of diversity hinders genomic discoveries for all population groups, contributing to health inequalities.

In Leicester, Black communities represent the second largest ethnic minority group, so we engaged members of this community in a dialogue to better understand their perceptions, knowledge and experience about human genomics and its barriers, using a creative medium.

How ?
Through two focus groups, we had conversations with 11 people (nine women and two men), from different age groups who were part of the Black Caribbean, Black African or Somali communities in Leicester.

We discussed perceptions of human genomics, barriers to participation and the overall message to be delivered by the art piece. This was then created by our artist using feedback from the participants on content, colours, and materials.

What ?
People were familiar with the terms ''DNA'' or ''genetic testing'', but the word ''genomics'' was cryptic and unheard of. Trust, misinformation and lack of knowledge were the main barriers to participation. There was a genuine desire to learn more about genomic research and its impact on daily life, explained in accessible language.

Participants believed it is important to bring such dialogue to the local communities, and off the academic grounds, by organising future meetings in community settings, such as Highfields or St. Matthews, reaching out to schools and teachers, and local radio too.

They envisaged the art piece as a message of trust, hope and inclusivity for the future of human genomics. They wanted to relate to and identify with it using bright colours, and details specific to their cultures.

Vishal conveyed the idea into a DNA-inspired double helix made by humans supporting each other; both cultural and genomic information transcend time being carried over from ancestors to future generations. The bespoke skin layer was developed to represent our participants’ individualities: country flags, symbols, fabrics and patterns recalling their heritage.

Vishal conveyed the idea into a DNA-inspired double helix made by humans supporting each other; both cultural and genomic information transcend time being carried over from ancestors to future generations. The bespoke skin layer was developed to represent our participants’ individualities: country flags, symbols, fabrics and patterns recalling their heritage.